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Lyndsey Beeler

January 19, 1980 - October 4, 2019


Lyndsey  BeelerLyndsey  BeelerIt was a rough start. At birth, rather than being placed in her mother's loving arms, Lyndsey was handed to an attending nurse. Without so much as a glimpse, our beautiful girl was rushed down the hall and out of sight.
 
Back in our room at Salem Hospital, we learned our baby was born with a thyroid tumor that precluded her ability to breathe. Once stabilized, she would be transported to OHSU for surgery.  Welcome to the world, sweet Lyndsey.
 
The surgery was a resounding success. After a couple years of good health and joy it became apparent that all was not well.  Unrelated to her tumor, Lyndsey had been born with Cystine Cystinosis, a rare genetic disorder for which there was no cure or treatment. The prognosis was poor as most children with cystinosis live only 10 or 12 years. She sure fooled them.
 
It wasn’t easy though; a multitude of doctor appointments, blood tests, two kidney transplants, and various poking and prodding. Through it all, she maintained an outlook and zest for life that belied her struggles.
 
She also had some intensely wonderful times: she had relatives and friends who knew their time with her was limited and made the most of it.  Astronomy, hiking, and photography with her dad, quilting, jewelry making and other beauty and utility with her mom, kidding around with her fiercely protective sister, rowdy discussions about history and politics and so much else with cousins and others. Her proudest genealogical accomplishment was tracing her ancestry back to the Revolutionary War and becoming a member of DAR. She was greatly loved.
 
Throughout her life Lyndsey participated in clinical research of the Cystinosis Research Foundation.  Donations can be made to: https://www.cystinosisresearch.org or, CRF 19200 Von Karman Ave suite 920, Irvine, CA 92612.
 
Survivors include Mother, Debra Beeler, Father, Alan Beeler, Sister, Jenee Hooton and a host of aunts, uncles, cousins, nieces and nephews.

In keeping with Lyndsey's wishes, a small gathering of family and friends will be held at a later date in her honor.
 


 
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Our hugs and prayers are with you and your family. We didn't know your daughter but the love shows through. It is truly a blessing you had as long with her as you did. Praise the Lord for that. Bless her in Gods arms now at peace.



Just finished reading what you wrote about Lyndsey and her early life; never knew all that; it has been astounding how she has held a positive outlook at life; it has been a privilege to get to know her, even a little bit. 



 no one knows how long we have on this earth.  Lindsey was dealt a tough hand but made so much out of her life - she was a fighter from the very beginning - so sorry for your family’s loss- my prayers are with you.